Monday, December 8, 2008


Well, they removed the pick line last night and bumped him up to full feedings. He is now getting 5.3 ccs per hour through his feeding tube. That's a little over 4 ounces per day. That seems like a ton for this little guy! Soon he'll be a pudgy little roly poly kid!

His breathing dipped a little in the night. They had to increase his oxygen and reposition him 4 times throughout the night when he stopped breathing. They discontinued his prescription for caffeine yesterday (which he was getting to help stimulate his breathing), so it's hard to know if he's being affected by that, or if he's got reflux. Reflux is super common in preemies (and common enough in full term babies!) and it tends to manifest itself in apnea like he exhibited last night. They'll be monitoring and evaluating this new development.

Crew has a big day today. On the docket should be blood tests and a head ultrasound to check for brain bleeding. He also has an echocardiogram scheduled for today to investigate a heart murmur that has just developed. I'm trying not to be concerned about the heart murmur because Kinley and I both have the innocent variety and it would stand to reason that he would share that genetic trait.


Heather said...

I just wanted to say that I am so very touched by your story, and that of your family. I will keep your family in my prayers. Crew is beautiful!

Julie said...

You are so strong, I am praying for your little guy that he will continue to get stonger everyday.

Brooke said...

I have been through a similar situation. My sister in law told me about your blog and I wanted to get in touch with you. I had my twins 18 months ago at 30 weeks. My son was stillborn and my daughter was in the NICU. She also had NEC and almost died from it. In fact the doctor told us that she would not make it through the night. Anyway I just want you to know that I would love to correspond with you if you would like. My name is Brooke and my e-mail is
I wish you comfort and prayers, especially at this very difficult time that very few can understand.